Youngster to meet First Minister
The First Minister has agreed to meet a nine-year old Larbert boy and his family who are calling for her help in accessing a drug to treat his rare condition for a second time.
A petition to get Michael Young, who suffers from muscle-wasting Duchenne muscular dystrophy, has now collected almost 100,000 signatures to get him access to Translarna – the first drug of its kind to treat an underlying cause of his condition.
His family were left devastated last month when regulator, Scottish Medicines Consortium (SMC), rejected the drug.
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Hide AdNicola Sturgeon will meet Michael on Wednesday and his family hope to use the meeting as a last resort plea for the First Minister’s urgent intervention to help eligible patients in Scotland receive the drug, which could keep them walking longer.