Bonnybridge boy with rare disorder on way to completing 5k a day challenge

A remarkable boy whose family worried he may never walk is on course to complete a 155-kilometre challenge in memory of his late grandfather.

By Jonathon Reilly
Wednesday, 27th May 2020, 4:45 pm

Rory Procek, of Bonnybridge, set himself the goal of taking on a 5k every day in May to raise money for Strathcarron Hospice, where his ‘granda’ Raymond wanted to spend his final days but didn’t get the chance to before he died of bowel cancer in March.

The eight-year-old was born with a rare chromosome disorder which results in profound and multiple learning difficulties.

Rory has been supported all along the way of his fundraising mission by mum Karen, dad Kris and brother Logan (10) and has so far received more than £1700 in donations.

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Rory Procek has been supported by mum Karen, dad Kris and brother Logan throughout his fundraising effort for Strathcarron Hospice

Although he has to use a specialist buggy, he still manages to walk a section of the route each day with his family, who have also cycled some of the distance.

Such is his determination to see the challenge to the end for the palliative care service, not even heavy rain showers have stopped Rory in his tracks.

Mum Karen said: “When he was born we didn’t know if he would be able to walk at all so Rory has been amazing doing this.

“We had only put in a £250 target but people have been incredibly generous. Hopefully we can get to £2000, that would be amazing.

“What we’ve got so far is way more than what we ever envisaged which is testament to the fact Rory is so amazing!

“Rory is non-verbal and attends one of the specialist education provisions, The Thistle Wing at Kinnaird Primary School.

“He has been loving the challenge, especially as we walk past the Falkirk High train line as he loves waving to the trains. We’ve been very lucky with the weather but we were out last Saturday when it was absolutely pouring, however, he doesn’t care and just loves it!

“A massive thank you to everybody who has donated. We’re raising money for a really worthy local cause.”

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