A Falkirk teenager who brought out the kindness in others during his all too short life died last week.
Lewis Broadley sadly succumbed to the rare terminal condition which he and his family coped with admirably throughout the majority of his 17 years.
The former Torwood School pupil died at Rachel House in Kinross last Thursday after being transferred there from Forth Valley Royal Hospital.
Diagnosed with Sanfilippo Disease, also known as Mucopolysaccharidosis III, at the age of four, Lewis spent most of his childhood without the ability to hear or speak.
The Falkirk Herald first met Lewis, along with parents Gordon and Norma and sister Megan, back in 2007. The family were attempting to convert their home so it was as safe, secure and stimulating as possible for their wee boy.
Lewis, who had already started becoming unsteady on his feet, would soon need to rely on a wheelchair.
This week Norma paid tribute to her son and the generosity and commitment of family, friends and others who had helped him.
She said: “He touched the hearts of an awful lot of people and we’re grateful to everyone who helped him and looked after him throughout his life.”
Rachel House, a hospice run by children’s charity CHAS, has been a godsend to the Broadleys over the last few weeks, becoming a second home to them as Lewis’ health deteriorated.
Norma said: “The support Rachel House has given us, especially Megan, is just amazing and we also thank everyone at Forth Valley children’s ward and the community nurses for all their help.”
Over the years the family have been inundated with cash donations from organisations and individuals who have taken part in a wide variety of sponsored events.
Everyone shared the same goal, to make however many years Lewis had left as comfortable and enjoyable as possible, whether it was sleeping in his specially modified bedroom, playing with sensory equipment or simply watching the birds outside on the garden decking.
Norma said: “He was just one of those kids everyone was taken by and he lived as full a life as we could manage, going on holiday every year and adapting our home.”
The family asked people to contact William Scott Funeral Directors if they want details for Lewis’ funeral and said there will be a collection for Rachel House if anyone wants to make a donation.