A family whose daughter suffers from a rare brain condition has enlisted the help of Elvis to give her a better quality of life.
James and Leanne Flynn’s four-year-old girl Lucie has Rett syndrome, a severe neurological disorder, and depends on 24-hour care from her parents.
The condition is mostly found in females and affects speech, hand movements and breathing.
Lucie was diagnosed with the condition in November last year but, common with the normal symptoms, her health has gradually deteriorated.
The Larbert couple, who also have another daughter Millie (2), have both been forced to work part-time and have set up the Little Lucie Flynn Fund to raise awareness of the condition and money to renovate their home to help them provide better care for her.
And world champion Elvis tribute act Johnny Lee Memphis (Jon Fleming), who is a family friend, has kindly agreed to donate the proceeds from a one-off gig at Larbert’s Dobbie Hall next month to help the couple’s campaign.
He said: “As an Elvis tribute artist I not only like to perform as Elvis, but like to continue to preserve Elvis’ values.
“Both my band and I are very excited at getting the chance to give our time, energy and performance to help raise money for Rett syndrome, specifically four-year-old Lucie Flynn. To be in a position to help those less fortunate in life is an opportunity that should not be missed.”
Dad James (34), a driver for Fitzcharles Coaches in Grangemouth, said: “It’s a rare condition and we’ve been working with a charity to raise awareness.
“We also need to change the downstairs into a living space for Lucie because she needs 24-hour care. Lucie has lost the ability to speak now and has no communication but she has just learned to walk, which is a rarity.
“There are so many people and local businesses we’d like to thank, especially Jon, who have donated prizes and money for the night.”
Lucie is to undergo a sleep study to determine whether she is having seizures and an ACG brain scan at Yorkhill Hospital for Sick Children on Tuesday.
Tickets for the Jonny Lee Memphis Elvis night at the Dobbie Hall in Larbert on September 3 are available from the Steeple box office on (01324) 506850.
For information on the campaign and Rett syndrome, visit the Little Lucie Flynn Fund page on Facebook or www.rettuk.org